Round 22 Day 1!

Yesterday,(Monday), I started round 22. Its been almost 2 years that I’ve been on IVIG. That’s crazy! So many things have changed, and a couple more diagnosis since I started (will write about that later), but I’m still going!

Day 1 went okay. It hurt when my port was accessed with the needle for some reason, but it got accessed. We didn’t get any blood return, but it’s flushing and flowing good, so we went ahead and did the infusion.

I had some stress yesterday, as the husband was home. He didn’t have work due to the holiday. I don’t like when anyone is home while I do my infusions. It makes me uncomfortable, and stresses me out. If you’ve read my blog, then you know why!

It was also a very unusually cold day here in San Diego, so I kept warm wearing my Jo Koy hoodie. He’s my favorite comedian, and the nicest guy in the world. If you haven’t had the chance to see one of his shows, you don’t know what you’re missing. Your stomach will hurt from laughing so hard.

I’m doing day 2 while I write this, so I’ll write about that either later today or tomorrow.

Have a good day!


Motivational Monday Moment #1!

So, I thought I’d start a new thing here on the blog. I want to start a Motivational Monday Moment. I’d like to help get your week started, and in turn, help me with my anxiety and depression, and hopefully be more positive throughout the week. Let me know what you guys think about this idea in the comments.

So, here we go. First Motivational Monday Moment:

My daughter, Tiffany, started me with this one. She enlarged this into an 8×10 so I can frame it. I see this quote every morning when I wake up.

Have a good day!

Round 21 Day 4!

Oh my goodness! Round 21 is over! Thank goodness! It seems like it’s been such a long week! I’ve had so much stress, which has caused me high blood pressure, and painful side effects that I wouldn’t wish on my worst enemy. I know the IVIG is helping me, but having to do it with no support, and so much stress is very hard.

This guy! I’m so thankful for him! He’s the best therapy dog ever! He always knows when I’m hurting or when I need him. He always stays with me the whole infusion each day, and that’s 7-8 hours. I just love him so!

I’m done for another 3 weeks. It seems these 3 weeks come faster and faster! I feel like I just finish, and start to get back on my feet, then it’s time to do it all over again. Crazy how time flies!

Hoping to rest this weekend! I really hope I can. I don’t feel good, and don’t feel like doing anything. Pain seems to make the anxiety and depression worse! Hoping to do something about this soon.

Have a good weekend!

Round 21 Day 3!

The day starts early for me, due to the fact that my infusions take 7-8 hours to infuse. I got up at 5am so I could see the super blue blood moon, and have enough time to jump in the shower before the husband and son needed the bathroom to go to work. My nurse come between 7-7:30am, so I need to be ready by then. Plus, I don’t like my house messy, so I need to clean up. FYI, I don’t like getting up early!

My daughter recommended I watch this, so I watched about 9 episodes this morning during my infusion. I’m glad it’s funny, because my blood pressure was up again today, and the show helped me relax, laugh, and bring down my blood pressure.

Side effects weren’t so bad today. I got the lower back pain everytime I got up, but it would feel better once I got back into bed and settled in. I’ve also been drinking a lot of electrolyte water during my Infusions, along with the IV fluids to help out. It’s helping!

This guy, my therapy dog Dallas, laid with me all day. He snuggled up right next to me, and never left my side. I just love him so! He takes such great care of me!

So, my infusion ended around 3pm. I’ve been laying in bed ever since. I’m starting to feel some pain in my neck, and a headache coming on. Not sure if I’m going to take something, or just try to sleep it off.

Day 4, and the end of round 21 is tomorrow. Hoping I’ll be able to relax all weekend. I don’t want to do anything.


Round 21 Day 2!

When I got up this morning, I opened my blinds and noticed the sky was looking pretty spectacular. Since I was up early for my infusion, I decided to make the most of it, and caught this beautiful sunrise! Amazing!

Day 2 was a struggle today. My blood pressure went up pretty high. We almost had to call the doctor, but I took a Xanax, and it brought it down to normal. I didn’t really feel like I was having any anxiety, but I guess I was. I do have a lot of stress, and I didn’t sleep well last night, so that could’ve been it.

I did fall asleep during the infusion. I fell asleep while General Hospital was on, so I’ll have to watch it later. It seems I get really tired between 1-2pm. This guy fell asleep right next to me. He’s the best therapy dog ever. He never leaves my side during my infusions!

I’m laying in bed now writing this blog post, and trying to rest. I know I’m not going to get much rest when these people get home. They don’t understand what I’m going through, and expect me to be okay. Such is my life!

Day 3 tomorrow!