Round 11 Day 2!

My IVIG infusion for today is almost over. I’m looking at maybe another hour to go. It’s been a long day, but I’m glad it’s almost over. 

Today went well. The fatigue was overwhelming, and I had a slight lower back pain, but it didn’t last long. I’ve been drinking tons of water, which I’m told helps with the side effects, so I’m doing good. I’m just feeling really tired right now. 

I can’t believe I’ve been doing these infusions for almost a year now. I know they’re helping, but I wish they’d help more then they do. My lab work CK level is lower, but still considered in the high range. At least it’s not in the high thousands like it used to be. I’m still feeling a lot of neuropathy in my legs, and now I’m having lots of joint pain and problems, but I’m doing better then I was before I started IVIG. 

The infusion is over for the day. What am I doing now? Not resting , that’s for sure. I’m up making New Mexico chili. I need to eat, and by the time hubby gets home, he won’t want to do anything. He always says he had a rough day, and is so tired. WTF does he think I just did all day? No worries! I’m a strong ass woman, and I can get things done no matter what! I’ll rest later!

Have a good night!

Round 11 Day 1!

Another month, another round of IVIG. What sucks is that it’s my birthday this coming weekend, and I’ll be recovering from this weeks treatments. Hopefully, by Sunday, (my birthday), I’ll be able to go out to dinner at least. Hopefully the hubby planned something, but I’m going to say right now that I know he didn’t. He’s never done anything for my birthday, or anniversary in the last 11 years, but that’s a whole other blog post.

Right now I’m feeling okay. I finished my infusion a couple hours ago. I think I fell asleep for an hour or so. At least that’s what my nurse said. I swear I could still hear everything going on around me while sleeping though. Who knows. 

Also, the hubby was home all day today, so I felt so uncomfortable and stressed all day. He’s not usually home, but he had a scheduled day off, as we were supposed to go out of town this past weekend, and it didn’t happen (long story). Anyway, I don’t like him home when I’m doing infusions, because he doesn’t want anything to do with my health issues, because it’s too much for him. I think I’ve talked about this before. Thankfully, he stayed in the living room all day, and don’t bug me much. 

Well, tomorrow is day two. I’m praying for minimal side effects, as day two is usually the day side effects, if any, start to emerge. At least, if I do get any, they’re not as bad as the first few months were. Those were horrible.

Have a good night!

FML!

I’m so hating this day! Saturday is always my worst day after a week of infusions. It seems to make my fibromyalgia act up, and every single inch of me hurts. My skin hurts to the touch, and you can’t even touch me. It hurts to shower, walk, breathe, everything. I wish I could just sleep this day away.

Did anyone help me today? Well, the hubby went to do the laundry at 5am this morning at the laundry mat, but then came home and expected me to go grocery shopping for  Easter dinner tomorrow. I even had to do the driving. I’ve also had to take my dog out to the bathroom all day too.

I don’t want to do anything! I want to lay around and do nothing! I hurt! What part of that doesn’t anyone understand?

Have a good Easter everyone!

It’s been a rough day!

This day has been horrible! I’m just not feeling good, but I still got up and cleaned the house. Of course, with no help. Everyone knows that I don’t feel good for about a week after my infusions, but they still expect me to act like I’m fine, and do what needs to be done around the house. I just can’t anymore!

I just want to lay in bed and sleep. I don’t want to do anything. I don’t feel good. The infusions this week, and every month, are draining. I’m exhausted! I hurt all over, I’m depressed, and I just want to be able to chill and have someone take care of me. I don’t understand why no one wants to do that. I don’t understand why no one understands.

I’m laying on the couch right now trying to watch some tv, but I can’t even concentrate on it. My head hurts. I want to go to bed, but I need to stay up till at least 10pm to take the dog out one last time.

I think I’m going to start writing more, because I need to vent, and I have no one to talk to here at home. I just need to get all these feeling out.

Have a good weekend, and Happy Easter!

Round 10 Day 4!

I don’t really have much to say today. I’m just glad this week is over. I’m extremely tired, having a little pain, and of course, not support. Going to try to chill, and maybe get some sleep.

These pictures are from my day!

I hope everyone had a good day. If I don’t post again this week, I hope everyone has a good weekend!

Round 10 Day 3!

This guy is my caretaker today, and everyday, but especially today as I do my 3rd day of IVIG infusions. He is always by my side, but more so the week of my infusions each month. He just knows I need him, and I’m ever so grateful for him. When I rescued him, I knew I was saving him, but he he became my emotional support dog, and he really saved me. My anxiety is so much more under control with him around.

I’m really not feeling this infusions today! I’m so exhausted, and just don’t feel like doing this. It takes forever, and ruins my whole day. Actually, doing these infusions every 4 weeks really ruins my whole month. They are a week out of my life, then at least a week to recover, so in actuality, I only have 2 good weeks out of the month to do things I can and want to do. I work my life around those 2 weeks. I try to get out and go do stuff during those weeks, but since I feel depressed, I usually don’t want to go do anything. It sucks! I do want to go get another tattoo, so maybe before my next week of infusions I’ll go do that. Of course I’ll post a picture so you all can see it!

These two bottles are what I do everyday. It takes 8 hours to infuse. I also take Tylenol, Claritin, and a syringe full of Solu-Medrol before each days infusion. It’s supposed to help with any side effects I may have. 

That’s it! I’m finally done for the day. Thank goodness! I’m so tired now. I also have a slight headache. I’m going to take some ibuprofen and chill on the couch for the rest of the night. One more day, and I’m done for this month. Next month, I am unfortunately doing my infusions my birthday week. Sucks, I know, but I have to stay on the 4 week track or it throws off my lab work, and my body can tell. 

Have a good night everyone! 

Round 10 Day 2!

Today’s infusion was kind of rough. I’m not sure why. Maybe because of all the stress I’m going through, maybe I’m not drinking enough water before and after my infusions, maybe I’m just fed up! 

My blood pressure was up during my infusion, I was having lower back pain, headache and overall, just feeling like crap! I don’t usually feel like this anymore during my infusions. I’m past all the stupid side effects, but today was different. Even my nurse noticed something was up, and that I seemed to have a lot on my mind. We are attributing all these side effects to that. 

Today was also National Pet Day, and as always, Dallas, my emotional support dog was by my side all day. He’s so good when it comes to my infusions. He just knows I need him, and lays right next to me all day. I just love him so! He’s the only support I have at home, so it’s nice to have him next to me. Sometimes I wish he could talk back, so when I tell him all my problems, he could give me some advice. At least he knows how to make me feel better.

Day 3 tomorrow. This week of infusions is almost over. Thank goodness! 

Have a good night!