Last week was round 26. I wasn’t sure who my nurse was going to be, as my regular nurse is still out sick, my second regular nurse was having surgery, and I told them I didn’t want someone I didn’t know. Thankfully, the weekend before my infusion week, I got a call from my first nurse, Gail. She said she was going to be my nurse all week. Yay! At least it was someone I knew. Gail was my nurse when I used to get my infusions at the infusion center.
The week went pretty well. I slept through most of it! I was so tired, I couldn’t keep my eyes open. The side effects weren’t that bad. Gail would remind me around 11am to take an 800mg ibuprofen, which helped keep the side effects at a minimum.
I felt like the week went so slow. Maybe because I slept through it all, but it just dragged. Here are some pictures from the week:
So, that was it. Not too exciting. Same thing, every 3 weeks. I’m supposed to get my next infusion July 2nd, but the brand of IVIG, Gammagard, is having a national shortage. They’re trying to switch me to another brand, but the insurance is giving the doctor and infusion company a hard time. More to come about this!
I hope everyone has a good weekend!