Got started late today, as my nurse had a doctor’s appointment this morning. I dont mind accommodating my regular nurse, but I’d rather start early, so as to be done by the time the husband gets home.
We got blood return today while accessing the port! Yay! I’m so glad, because if we didn’t get any blood return this time, I’d probably have to go to the hospital to have my port checked out. My nurse wasn’t worried though, as she says that this can happen, then it just starts working again.
No problems today! No side effects or anything. Everything ran smoothly. I got the new hydration order, so I’m getting a liter of fluids along with my IVIG, plus I’m also drinking alkaline water with electrolytes and vitamins. I’m telling you, all these things help with the side effects so much! Anyone on IVIG should be doing this. I highly recommend it.
I have to ask myself this all the time. I don’t understand why I have to be sick like this! I’m the only one in my family sick! It just doesn’t make sense to me. I’m tired of being sick! I want my life back!
I’m so thankful for my baby, Dallas! He always seems to know what’s going on with me, knows when I’m in pain, and always sticks by my side during my infusions.Had some side effects today, and this guy stuck by me so close. He knew I wasn’t doing well, and laid next to me for the whole 8 hours. He’s my rock, especially on these days. I just love him so!
Bad pain and side effects day! I thought this quote was perfect for today, as sometimes I just feel like giving up, but I know I can’t! I have to be stronger than that.
Haven’t been able to sleep at all this week either. It always happens during infusion week. I mean, I never sleep, but it’s worse when I do infusions. I so need some sleep. One more day to go!
I have to keep telling myself this, so I made this my wallpaper on my phone. I’m hoping that if I see this everyday, that it’ll help me stay positive to get through all this. Plus, I got the results of my CT Scans and Swallow Function Test, with some not so good news. Will have to go see some more specialist. When am I going to catch a break! I can’t take much more of this, it anymore diagnosis.
I’m done with infusions for this week. Day 4 was another rough day, and I’m glad it’s over! Can’t wait to take a nice shower in the morning.
Round 24 in 3 weeks!
Have a good weekend everyone! Stay strong!