Last week, I had my 16th round of IVIG infusions. I didn’t get a chance to write any blog post like I normally do each day, as I was so exhausted each day. I think my body was still recovering from the surgery the previous week.
So, this is me on day 1. Look at those bags under my eyes!
I had an outside agency nurse, a male nurse. This is the first time I’ve ever had a male nurse. They had to get an outside agency to do my infusions a couple days this month, because my regular nurses weren’t available. He was nice though. If I ever have to have an outside agency again, I’d ask for him.
This is day 2, but this is what I get everyday, 35 grams of IVIG and a bag of hydration.
Day 2 went well. I had one of my regular nurses this day, Susan. She’s the sweet, quiet one. I really like her. We have a lot in common.
I actually think I fell asleep for a couple hours this day. I was so tired I could barely keep my eyes open. I really wish my sleep was productive, but I barely sleep. I can still hear what’s going on around me.
I did have some high blood pressure this day. I took a Xanax, and it brought it down to normal. I don’t know what was going on. I didn’t feel like I had any anxiety, but the blood pressure started to go up, and since I’m already on 2 blood pressure medications, a xanax it is.
I had both these guys for Day 3. Dallas, the dog, is my emotional support dog, and is always with me for infusions, but the cat, Justice, decided to hang out too and keep me company.
Day 3 went okay. I had the male nurse, Aaron, again today. My blood pressure was a little higher than normal, but not enough that I needed to take any medication. I did fall asleep again for a little while. I told you, I’m just so exhausted. With my surgery the previous week, then infusions the week after, my body is dying for some rest! I also had some side effects; the lower back pain which runs up my spine into my neck, and a slight headache. It wasnt too bad, like it used to be before the hydration. I took some ibuprofen and it helped.
I posted this on my instagram for Day 4.
By day 4, I was completely fed up. Not with my nurse, (I had Susan), but with being sick, and having to go through all this. I really need a break from my health. I just keep getting hit with more and more health problems, and I’ve had enough!
After the infusion, the needle got taken out of the port, and I was free! It’s always so great to get to the end of the week, because while the needle is in the port all week, I can’t take a shower. I’m only allowed to take a very careful bath, so as not to get my port wet.
So, that was round 16. I still can’t believe it’s been 16 months already, but it has.
I have some other blog post coming up, of things I’ve done in the last couple weeks, but those will come soon.
I hope everyone is well. Take care!