Last week was round 34. I had some nurse I didn’t even know. My regular nurse was out sick. I didn’t find out until this new nurse called me the night before. I really wish they wouldn’t do this. I’ve asked them to give me a heads up if my regular nurse can’t make it, but they never do.
The week went okay. Found out I can’t do my saline fluids along with the gammaplex. It was okay when I was on gammagard, but with gammaplex you can’t. I’m only finding this out now, because this new nurse has another patient on gammaplex, and the pharmacist had told her. I can’t believe this! I’ve been on gammaplex for months now. These people can’t get their shit together. I’m so tired of it! Anyway, so the way I have to do it is, 500 cc of the fluids before I start the IVIG and then 500 cc after IVIG. I guess I’m going to have to explain this to any nurse I have in the future, which isn’t my job.
Not sure who my nurse is going to be for my next infusions, as my regular nurse is supposed to be out of town. I hope it’s somebody I know.