Round 42!

Round 42 started on Saturday, May 11th. We started it on a Saturday, as my regular nurse Elizabeth came back, but she was going out of town on Wednesday for the birth of her grand baby. I didn’t mind doing it on the weekend, but I don’t think my husband was too thrilled! I also found out from Elizabeth that she’s moving in August, so she won’t be my nurse anymore. I’m so sad, but she’s going to live with one of her daughter’s to help her with the kids. Hopefully I can find a good replacement that I like and get along with.

The next day was Sunday, Mother’s Day. I don’t usually do anything for Mother’s Day anyway, and none of my kids were around, except Anthony, who lives with me, so it was all good. So this was how I spent my Mother’s Day:

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I slept most of the infusion until Anthony got home from work. I’m glad I slept, because I had a migraine. I don’t know why, but for some reason, I’ve been getting a lot of migraines lately during and after my infusions. I’m going to have to talk to my doctor about it.

Anyway, when Anthony got home from work, he brought me flowers for Mother’s Day. I was so surprised! It was so sweet of him, and made me tear up. They were so pretty!

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Day 3 was the day before my birthday. I can’t believe I was turning 51. Here’s me in the last day I can wear this shirt.

I slept most of the day, because my head and back were hurting. No matter how much fluids or water I drink, the side effects still get me. I just can’t get away from them.

Happy birthday to me! I can’t believe I have to do my infusions on my birthday, but at least it’s the last day. Also, I can’t believe I’m 51 years old. Man, where do the years go?

I’m so glad I got to see Elizabeth again, but I’m sad that she’s moving away in August and I won’t see her anymore. We’ve been together for 3 years. I’ll miss her!

After this round, I got really bad migraines, and had to stay in bed all weekend, and part of the following week. My migraine medication isn’t working, and I may need to find new medication to help me. Hoping to see my neurologist soon.

 

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Sengbirch Compatible Keyboard Case with Detachable Keyboard Review!

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Since I’m in bed a lot because of chronic illness, and I don’t always want to go get my laptop from the livingroom, and typing on my ipad’s touchscreen has gotten a lot harder for me, I figured I should get this case with a detachable keyboard for my ipad. It makes it perfect to use in bed, as it turns my ipad into a mini computer. The keyboard has a backlight feature which makes it better able to see the keys in low light, and perfect for me to use when my husband is sleeping. It has 3 levels of brightness and 7 different colors of light to choose from. Purple is my favorite!

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The keyboard hooks up to your ipad via bluetooth, and is IOS, android and windows compatible. The leather case it comes with locks your ipad in place, and holds the keyboard in place via a magnetic system. The keyboard charges quickly, and can hold a charge for a few days. The case is strong, looks nice and protects my ipad.

Purchase here:

Multicolor Stainless Steel Straws Review!

These straws are amazing! They are metal and come in vibrant rainbow colors, both with the 5 vertical, upright design and the 5 “bendy straw design,” so you get a nice mixture of both as part of the collection.

They are easy to clean; I just pop them in the dishwasher and they’re done. It also comes with 2 cleaning brushes, which I use to quickly go through the straws before I throw them in the dishwasher.

These are very sleek and stylish, and will add a touch of class to your beverage of choice. Not to mention they are totally eco-friendly! I make sure I always have a straw with me wherever I go, so I don’t have to use a plastic straw.

The only thing I’m not happy about, is that these straws aren’t as long as my other metal straws that I already have, but that’s okay. These are colorful, and so cute, so I know that I’ll still use them anyway.

Purchase here

Alfa Gear Towel Seat Cover Review!

This microfiber towel seat cover is exactly what I’ve been looking for! It is the perfect size to cover my seats for when my husband is done working out at the gym. He is always so sweaty, and just putting towels down on the seats, just doesn’t cut it. The towels slide around, and my seats still get wet. This microfiber towel seat cover has a nonslip backing, so it doesn’t slide around on your seats, and it installs in seconds, with a buckle that goes around the headrest.

Since I live at the beach, this is going to be perfect for those beach days when we’re all wet and sandy, and I don’t want to get my seats all messed up, because this towel seat cover is 100% waterproof.

The towel seat cover is machine washable on the gentle cycle, and should be air dried. Or for simple cleaning, you can just wipe it down. It’s that easy!

Purchase here

Round 41!

Round 41 was the week of April 22nd, so I’m not that far behind on writing this blog post! Ha! Still no blood return this round, but really nothing to worry about, so says my nurse.

This was a hard week for me, because I was also sick with bronchitis. I didn’t sleep much during my infusions, because I was also on antibiotics, prednisone and bezonatate. I tried to rest, but I was uncomfortable, and, I think, overly tired, that I just couldn’t fall asleep.

Side effects were the same. I did get a migraine, which screwed with the trigger point injections I had 10 days earlier. I was hoping the trigger point injections would’ve lasted longer, but I think because of the infusions, and the aseptic meningitis I get as side effects during the infusions, they didn’t last. I plan on getting the injections again though in a couple months.

Next round, my regular nurse, Elizabeth will be back. We’ll be doing my infusions a couple days earlier, on the weekend. The husband isn’t thrilled that we’re doing it on the weekend, but if I don’t, I’ll have to have a registry nurse for my regular week, and that’s a no go for me.

Until next time…

Round 40!

Round 40 was the first week of April. The only problem we had, besides the usual side effects, was that we didn’t get any blood return from my port when we accessed it. It flowed good, and the medicine went in fine, so my nurse isn’t worried about it. We tried each of the 4 days to get some blood return, but we never did get any.

During the week, I got a couple of migraines, associated with the side effects of aseptic meningitis that I get during my infusions. They weren’t that bad, but I did need to take my migraine medication to get rid of them. I also used my heating pad to help with the associated back pain going up and down my spine.

I slept a lot this week, but it wasn’t good sleep, because my nurse wakes me up all the time for vitals. I wish I could just sleep right through. I really need the sleep!

I didn’t really get to rest much the weekend after infusions, as my dog had a groomer appointment, but at least I didn’t have to drive. My eyesight is really off after infusions, I don’t know why. It usually takes my eyes about a week to regain focus enough for me to be able to drive again.

That’s it! Still catching up!

Round 39!

Round 39 was the week of March 11th. Debra was my nurse. Looks like she’s going to be my nurse from now on. I guess Elizabeth isn’t coming back.

I didn’t really have any problems this round, except the usual side effects. I also wasn’t feeling well before this round started, so I felt really blah and completely out of it the whole week. I slept the whole time every day.

The week seemed to go by quickly. I’m glad, because days 3 and 4 I got horrible migraines. I don’t know why. I get plenty of IV fluids, plus I drink lots of water during my infusions when I’m awake. Anyway, I had to take my emergency migraine medication both of those days.

After this round was over, I made sure to rest up, because I had plans over this weekend that I couldn’t, and didn’t want to miss.