Motivational Monday Moment!

 

I have to tell myself this everyday! If you’re struggling this week, I hope this gives you some strength.

Have a good week people!

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Motivational Monday Moment

So, I thought I’d start a new thing here on the blog. I want to start a Motivational Monday Moment. I’d like to help get your week started, and in turn, help me with my anxiety and depression, and hopefully be more positive throughout the week. Let me know what you guys think about this idea in the comments.

So, here we go. First Motivational Monday Moment:

My daughter, Tiffany, started me with this one. She enlarged this into an 8×10 so I can frame it. I see this quote every morning when I wake up.

Have a good day!

Round 21 Day 4!

Oh my goodness! Round 21 is over! Thank goodness! It seems like it’s been such a long week! I’ve had so much stress, which has caused me high blood pressure, and painful side effects that I wouldn’t wish on my worst enemy. I know the IVIG is helping me, but having to do it with no support, and so much stress is very hard.

This guy! I’m so thankful for him! He’s the best therapy dog ever! He always knows when I’m hurting or when I need him. He always stays with me the whole infusion each day, and that’s 7-8 hours. I just love him so!

I’m done for another 3 weeks. It seems these 3 weeks come faster and faster! I feel like I just finish, and start to get back on my feet, then it’s time to do it all over again. Crazy how time flies!

Hoping to rest this weekend! I really hope I can. I don’t feel good, and don’t feel like doing anything. Pain seems to make the anxiety and depression worse! Hoping to do something about this soon.

Have a good weekend!

Round 21 Day 3!

The day starts early for me, due to the fact that my infusions take 7-8 hours to infuse. I got up at 5am so I could see the super blue blood moon, and have enough time to jump in the shower before the husband and son needed the bathroom to go to work. My nurse come between 7-7:30am, so I need to be ready by then. Plus, I don’t like my house messy, so I need to clean up. FYI, I don’t like getting up early!

My daughter recommended I watch this, so I watched about 9 episodes this morning during my infusion. I’m glad it’s funny, because my blood pressure was up again today, and the show helped me relax, laugh, and bring down my blood pressure.

Side effects weren’t so bad today. I got the lower back pain everytime I got up, but it would feel better once I got back into bed and settled in. I’ve also been drinking a lot of electrolyte water during my Infusions, along with the IV fluids to help out. It’s helping!

This guy, my therapy dog Dallas, laid with me all day. He snuggled up right next to me, and never left my side. I just love him so! He takes such great care of me!

So, my infusion ended around 3pm. I’ve been laying in bed ever since. I’m starting to feel some pain in my neck, and a headache coming on. Not sure if I’m going to take something, or just try to sleep it off.

Day 4, and the end of round 21 is tomorrow. Hoping I’ll be able to relax all weekend. I don’t want to do anything.

Goodnight!

Round 21 Day 2!

When I got up this morning, I opened my blinds and noticed the sky was looking pretty spectacular. Since I was up early for my infusion, I decided to make the most of it, and caught this beautiful sunrise! Amazing!

Day 2 was a struggle today. My blood pressure went up pretty high. We almost had to call the doctor, but I took a Xanax, and it brought it down to normal. I didn’t really feel like I was having any anxiety, but I guess I was. I do have a lot of stress, and I didn’t sleep well last night, so that could’ve been it.

I did fall asleep during the infusion. I fell asleep while General Hospital was on, so I’ll have to watch it later. It seems I get really tired between 1-2pm. This guy fell asleep right next to me. He’s the best therapy dog ever. He never leaves my side during my infusions!

I’m laying in bed now writing this blog post, and trying to rest. I know I’m not going to get much rest when these people get home. They don’t understand what I’m going through, and expect me to be okay. Such is my life!

Day 3 tomorrow!

Round 21 Day 1!

Day 1 went well! No problems at all. My port is working really well, and the medication and IV fluids are flowing nicely.

I am a little bit tired, and feel kind of out of it, but that is normal. I’m just resting in bed right now, and plan on staying here the rest of the night.

I don’t know if I’ll be continuing my Infusions, because on Friday, I got a call from the company who handles my ivig and my Infusions, and they’re telling me I have to pay a copay of $100 per infusion. That’s $400 every 3 weeks. I can’t afford that, and that’s fucking outrageous! Are they for real? I’ve been on this for almost 2 years, and have been told over and over I don’t have a copay, and now they want me to pay? If this happens, I won’t be able to continue, even though the ivig is actually working now. I really hate insurance companies sometimes!

I’ll keep you guys posted on the copay thing, as I’m fighting it right now. I’m so tired of having to fight my insurance company for shit, but it’s what I have to do. I’m calling my case manager tomorrow to see what she has to say, and how she can help.

Day 2 tomorrow!

Round 20 is done!

I’m so glad it’s over! I’m worn out and extremely exhausted! Today, day 4, I could barely keep my eyes open. All I wanted to do was sleep, but I couldn’t fall asleep. I did close my eyes, but I could still hear everything going on around me. I also think the pain was keeping me awake.

Side effects consisted of the same from yesterday; lower back pain, which climbs up my spine to my neck and head. I used the heating pad again, and just now took 800mg of ibuprofen. I’m hoping it kicks in quickly.

This morning, since I was up early for the infusion, I decided to go outside and catch the sunrise! I love photography! I so desperately need a new dslr camera, but in the meantime, mostly all of my pictures are taken with my iPhone X.

Today’s sunrise!

Now I’m laying in bed trying to rest! I’m hoping to not do a damn thing for the rest of the night. I do not feel good, and I’m in pain. Maybe I can get a nap in, even though it’s already late afternoon.

Round 21 in three weeks!