Well, this month is a wrap! I’m done with my IVIG infusion for another 4 weeks. I can’t believe how smoothly this month went with the port. It didn’t hurt, except when my nurse first stuck me on Monday. I kept the needle in the port all week. It was nice not to have to be stuck a dozen times, like we had to with my veins.
Not feeling so well now. I’m having a slight headache and lower back pain, but it’s not as bad as it used to be when I first started IVIG infusions. Oh my goodness! The pain was so bad! I’m also so very exhausted! I haven’t slept well all week. I don’t sleep very well anyway, but this week has been worse. I usually don’t sleep well the week of my infusions, as I have to get up early to get the infusions started, because it take 8 hours to do them. I’m hoping to get as much rest as possible for the next few days. Hopefully the family will let me.
Have a good weekend everyone!
Can this just cure me instead of all these drugs being pumped into my veins?
Round 8 Day 2 is going well! My port works like a charm. I’m so happy with it. I so wish I would’ve gotten it months ago.
So, this is what I’m doing for Valentine’s Day. No going out for me. I don’t feel so hot after my infusions, so I just try to rest for the rest of the day. Not like much of the day is left after my infusion. Each infusion last 8 hours. Maybe the hubby will take me out next weekend to celebrate. At least he’s bring me home some dinner for tonight.
Happy Valentine’s Day people! I hope you all have a wonderful day with the ones you love!
Yesterday was the first day of my IVIG infusions since getting approved again. It was also the first time using my port. I can’t believe how easy it was! I wish my doctor would’ve allowed me to have it sooner. It was so nice not being stuck a dozen times, just to get and keep a vein. It hurt at first to get in the port, as my chest is still sensitive from the surgery, but it was nice not to be able to feel the fluids going through me. This was the best infusion I’ve had in the last 8 months!
I’m so sorry! I totally forgot to update this blog with what happen about my appeal for my IVIG infusions. It’s been quite a rough road, but I do have some news… I won my appeal! Yay!
I wish it was that easy, but it’s been a long week. I won the appeal last Friday, but it seems no one speaks to each other, so I didn’t even speak to the person to schedule my infusions till yesterday.
From Friday till today, it’s been back and forth conversations with so many different people, with so many different answers, that I got a migraine. It seems that I was approved, but each person got a different approval with different lengths of authorization. It was supposed to be approved for another 6 months, but as of yesterday, I was even told that I was only approved for 10 visits, which would only give me 2 1/2 months of infusions, as I do 4 days of infusions every 4 weeks. This whole thing has been so bad, that I was even assigned a case manager by my insurance company to fight all this for me.
As of speaking with my case worker this morning, it seems that it’s all been worked out for now. I’m approved thru the end of August for infusions. I’m so tired of this having to be a fight every single time we need a new authorization. It’s so stupid! They have proof from my doctor with lab work that shows the IVIG is working. I don’t understand why my insurance company has to mess with my quality of life all the time.
So, I’m scheduled to restart my infusions next week. I’m only 2 weeks behind. I’m so pissed about that. If I have to start all over with side effects again, I’m going to be pissed, and my case worker is going to hear about this. Those side effects are no joke. Also, because my whole schedule has been thrown off, I’ve had to cancel plans and stuff I had scheduled, because I don’t want to mess with my new IVIG schedule.
Have a good weekend everybody!
I so hate my health insurance! I just don’t understand them! Why would they approve me to get a port put in, then deny me continued IVIG infusions? So stupid!
I had the port put in two weeks ago, as my veins are shot. My next IVIG infusion was supposed to start yesterday, January 30th, but my insurance was taking their sweet time deciding whether they were going to approve continuing them. Monday came and went without any answer. Finally today, I get a call from my doctor’s office saying the insurance denied them. I immediately filed an appeal/grievance with Managed Healthcare. This is the third time I’ve had to do this. It’s really not fair that I have to fight for my health, and quality of life. I wrote in my appeal that this was an urgent matter, so hopefully they’ll approve this quickly. They usually do.
So, now I sit and wait! I’m so scared that this is going to take awhile. If it takes too long, then I could potentially have side effects from my infusions, like I did for the first three rounds of infusions. It took my body awhile to get used to it. I don’t want to go through all that again.
Please pray this goes quickly. This port is going to need to be flushed soon, and/or taken out if they don’t approve this. Plus, I’m so stressed from all this that I feel like crap, and I’m in a huge flare!
United Healthcare is really fucking with my life!
I finally got approved, and had my port put in last Friday. I was so nervous, but they gave me meds that kept me awake, but that I wouldn’t feel anything. Honestly, I don’t remember any of the procedure at all. I think I fell asleep!
Things still look the same in the picture above. I haven’t been able to see what it looks like. It’s still covered until tomorrow. I’m going in to have a port check done, and hopefully get these bandages off for good. It still kind of hurts, depending on how I move, and it’s itchy, which means it’s healing, so the bandages should come off. I’m hoping the port will be working good during the port check. I really don’t want to go in and have this done again.
My next infusions are the week of January 30th. This will be the first time I’ll be using the port. I’m hoping my insurance is going to have the authorization for the year in by then. The doctor’s office called yesterday and told me that the insurance keeps denying my IVIG again. So stupid, since they have proof that it’s working. I’m so over these insurance issues! At least the person in my doctor’s office is really pushing to get it approved. I dont want to have to get involved like I did last time.
So, that’s it for now. Will post a new blog post after my port check tomorrow.